“I wish it need not have happened in my time,” said Frodo.
“So do I,” said Gandalf, “and so do all who live to see such times. But that is not for them to decide. All we have to decide is what to do with the time that is given us.”
Sometimes the injustice and hurt in the world can feel unbearable. Mr. Roger’s famously said to, “look for the helpers.”
But, as adults, we also need to be the helpers.
We can’t single-handedly solve all of the world’s problems.
But we can collaborate with others to make a difference.
* The pins pictured are a combination of photographs from my personal collection and images of vintage protest pins found online. I’ve linked their sources here.
When we talk about autism or neurodivergence we often mention a spectrum. Sometimes this is misunderstood as a range of intensity from “more” to “less.”
But you cannot be “more” or “less” autistic or neurodivergent.
The spectrum is better represented by a color wheel.*
The spectrum is a reminder that every neurodivergent person is unique. Each color represents a neurodivergent trait: differences in sensory processing, language, socializing, focus, etc.
But even the color wheel is too static.
This is my attempt to illustrate the complexity and nuance of the spectrum of autism and neurodivergence.
For example, sometimes a person is described as sensory seeking or sensory avoidant.
Opposites on the color wheel.
But most of us are both.
Here is an example from my own spectrum. I experience water in my face as overstimulation… a sensation that, for me, is worse than physical pain. My nervous system completely floods with sensory input and enters a state of distress.
On the other hand, in the context of a warm bath I am “sensory seeking”. The feeling of being (almost) submerged in warm water calms my nervous system and helps me self regulate.
This is the same element.
Water.
But my internal experience is vastly different depending on the context. Supporting this sensitivity includes baths over showers, no sprinklers, pool splashing, or going underwater. When I interact with water on my own terms I find it deeply regulating and soothing.
Then we have a trait like focus. ADHD is often perceived as a deficit in the ability to focus (it’s right there in the name), but both people with autism and ADHD can experience hyperfocus.
This circle represents my hyperfocus.
I often enter hyperfocus when I am in creative flow or engaged with topics I am passionate about. Yet, I cannot reach hyperfocus without the necessary environment or supports.
This circle represents my difficulty focusing.
My ideal environment for focus is quiet and solitude. (For others it could be music and company… or body doubling.)
When I don’t have that I need supports like: a swivel chair for stimming, noise cancelling headphones, and more time. Because without access to hyperfocus I have to accept that tasks take more time. I can also become dysregulated by working in an overstimulating environment.
The spectrum becomes infinitely more complex when different traits overlap and intersect.
Not only is every neurodivergent human unique, but our spectrums may present differently from day to day and moment to moment, based on a variety of internal and external factors.
Some spectrums of neurodivergence may not fit the criteria for a diagnosis, but that does not make them any less valid.
Our world is technicolor.
Let’s stop imagining it as black and white.
Grab some art supplies and reflect on neurodiversity as you play with color. If you are neurodivergent what colors would you assign each of your traits? If you’re neurotypical how can you use this framework to support the spectrums in your life?
Love snail mail?
These watercolor washes were originally created for the Spectrum zine for my monthly subscribers. If you’d like a printed copy you can:
This resource library focuses on autism, ADHD, and hypersensitivity as these are my lived experience.* This area of research has been a passion of mine for nearly a decade. I’ll do my best to organize things so you can find what is helpful to you.
Hi, I’m Sarah Shotts. A late diagnosed autistic adult, author, artist, home educator, and erstwhile academic. Over the last several years I’ve been doing self directed research and collecting resources to better understand myself and my neurodivergent family. To learn more about me and my work click here.
Choose your adventure.
AUTISM 101 FOR PARENTSautism 101 for autistic adults
What is Overstimulation?
I made this video to share my experience of overstimulation.
I also find that my autistic traits are almost always rooted in sensory differences. So this a helpful place to start when discussing autism. Overstimulation can also be experienced by ADHDers.
When we talk about autism or neurodivergence we often mention a spectrum. Sometimes this is misunderstood as a range of intensity from “more” to “less.” But you cannot be “more” or “less” autistic or neurodivergent.
I made a zine to illustrate the complexity and nuance of being “on the spectrum.” You can read it here.
How it Feels to Me
You may also enjoy the picture book I’m co-creating with an autistic illustrator Gracie Klumpp. How it Feels to Me is an introduction to sensory processing for readers of all ages.
FOOTNOTES
* I have been professionally diagnosed with autism, but also have traits of ADHD such as time blindness and difficulties with object constancy. Having knowledge of these traits and functional coping strategies I have no interest in pursuing an ADHD diagnosis at this time.
Unfortunately, this book is needed more than ever.
Harmful information is being spread by the US government categorizing autism and ADHD as epidemics. Neurodiversity is not a broken brain! It is a brain that experiences the world differently and this picture book shows how.
If you’d like to support the project you can preorder or donate a copy to a school, library, or a neurodivergent family in financial hardship.**
If you missed my last email I wrote a post called What is Autism? that breaks down sensory processing and autistic differences.
The brain on the left is autistic. we process a lot more information in any given moment.
I end the post with this footnote,
“Being neurotypical just means that your brain is processing the world like most others. This means the dominant culture has been made to support the way your brain processes the world around you. You are surrounded by supports for your neurotype every single day.”
This is a concept I’d like to explore further. It really turns the idea of supports on it’s head.
I’ve come to the conclusion I need to free up some mental capacity to really delve into this world in the way that’s needed. Turns out proofing three separate books for self publishing is kind of a lot. I’m being patient with myself. There’s no rush on this.
Here’s a peek at my writing workspace.
I set this up in the living room when it was too cold to be in the studio (and soon it will be too hot.) It turns out that extreme heat and cold trigger migraines so I’m afraid I am a fair weather studio artist. Accepting that my body needs what it needs means making spaces that work for me.
If you’re reading this in your email inbox you can just hit reply to message me directly. I’d love to hear what you think. It makes it worth the time I put in.
Thanks for being here.
I appreciate you.
FOOTNOTES
* I’m no longer digitizing zines. Due to chronic migraines I’m attempting to cut down on screentime. I wrote a bit about that here.
† What is a microblog? Basically a social media style blog feed that I archive on my own site. I’m working on setting this up to autopost to Bluesky. I call my microblog scraps – evoking both a scrapbook or commonplace book and also the bits of kitchen scrap that end up in the compost heap.
** If you donate a book we are happy to find the book a home or to send it to the school or library of your choice.
I think I’m finding my groove with zine making. I had a lot of fun going analogue this month and in addition to my typewriter I also incorporated collage and nature rubbings.
Here’s an update, on How it Feels to Me, the picture book about neurodiversity I’m co-creating with illustrator Gracie Klumpp.
We’ve reached the proofing stage!
I couldn’t be more excited to share a peek our progress!
Before finalizing color palettes and fonts we decided to order an early proof to see how everything looks on paper. Something I’ve learned about self publishing is that early proofs can really help save time by identifying problems early on before they multiply.
Gracie put together a few spreads to test colors, fonts, and print quality. (Pinch & zoom to really get a good look on mobile.)
Lucky we did because we’ve completely changed our printer! (But more about that later.)
Here’s a really fun spread we’re experimenting with.
This is a visualization of sensory modulation that invites the reader to turn the book upside down to see how the levels change.
The next spread continues on from the first page, “All brains are different.”
“Just like all bodies are different.
We can see some differences, like if someone is tall or has curly hair, but we can’t see people’s brains.”
Here’s one more peek at some of the character work Gracie has been doing. I love seeing the concepts I’ve written about come to life!
These aren’t even finalized illustrations, but I’m already in love.
Two days before my birthday I opened a box to find this beauty inside…
Holding the proof in my hands was absolutely magical. It’s real. We are making this book.
And (unfortunately) it’s more needed than ever.*
Imagine my surprise when I opened the cover found someone else’s book inside.
The first 2/3 of the proof were pages from a completely different picture book. 🤯
I immediately texted Gracie to check the second proof. It had a completely different (but equally egregious) error. That edition had a huge white bar down the center.
The way this printer works these books were considered “final” and not “proofs.” †
Needless to say we are investigating different printers.
The quality will be excellent. We’re very happy with the sample book they provided.
But, the books are going to cost more than we budgeted. We haven’t finalized how much this will be yet. 48 Hour Books just invested in new printers and updated prices aren’t out yet. But the difference is considerable.
We’ll also be required to purchase a full print run (with a minimum of 100 books) rather than print on demand. This is the only way for the price of each book to come even close to our original budget.
There’s also the small matter that each proof will now be $40 instead of the budgeted $20. But this price difference ensures books (and proofs) are made with care.
I’m prepared (and able) to cover the difference in cost, but if you’d like to pitch in you can send donations via Venmo. I’ll share more concrete information about the pricing differences once we have that.
Is this the first time you’ve heard about How it Feels to Me?
Here’s a video from our crowdfunding campaign sharing the inspiration behind the book and our goals for self publishing.
If you haven’t preordered a copy yet you can preorder here.
Changing printers will definitely extend our timeline.
But we’re confident it will be worth the wait.
While we wait for 48 Hour Books to update their printers Gracie will continue refining the illustrations. Allowing me bandwidth to focus on proofs for Entwined & Ember (this is a big year for me!)
THANK YOU SO MUCH, each and every one of you, for all the ways you’ve supported this project!
We appreciate you.
P.S. If you’d like to support the project and don’t need a copy of the book you can also choose to donate a copy which will go to a school, library, or a neurodivergent family in financial hardship.**
* The US Government has recently categorized autism and ADHD as “epidemics” and is spreading harmful misinformation. I addressed it briefly in my new post titled, What is Autism?
† The printer was Ingram Spark, for the curious. We’d already dismissed Amazon for the hardcover edition. (Although we plan to release a paperback through Amazon later on to make the book as easy to find and accessible as possible.)
** If you donate a book we are happy to find the book a home or to send it to the school or library of your choice.
