From the Compost Heap header. A pencil style illustration of a compost heap with flowers and plants growing around it. A bee buzzes by and a white rabbit hops by.
  • Please stop calling yourself an HSP. 😫

    Hyper sensitivity is real, but the term HSP dehumanizes autistic people.

    Ok, deep breath.

    I needed to pull you in with the title, but that may have flared up your nervous system. Let’s start over.

    I’m mindful that I’m addressing sensitive humans.

    You might find it hard to change your mind because it means admitting that you’re wrong. I get it.

    I’ve felt that way too.

    We’re all imperfect humans trying to understand the world around us. Let me be clear that I’m not saying anyone is a bad person.

    But I am asking you to stop doing something that is hurting me, and I hope you’ll listen. My heart is beating like crazy while I type this, but HSP is trending and it’s only getting more popular.

    I don’t think the sensitive souls using it realize how much pain it is causing autistics like myself.

    I’m asking you to open yourself to the possibility that you might be using a term you do not fully understand.

    Did you know the term HSP is based on the book “Highly Sensitive Person” by Elaine Aron?

    I want to be clear that my issue with HSP is rooted in Aron’s writings. (She coined the term.) I have no doubt that you are highly sensitive and that your body processes sensory input in an intense way. I also remember the relief at realizing that truth for myself and reframing my sensitivity as a difference and not a character flaw.

    The term “highly sensitive person” sounds universal and harmlesss. But unfortunately HSP carries a lot of baggage and pain for any autistic person familiar with this book.

    Here is a direct quote from Aron concerning autistic people,

    “Their problem seems to be a difficulty recognizing where to focus attention and what to ignore.

    When speaking with someone, they may find the person’s face no more important to look at than the pattern on the floor or the type of lightbulbs in the room.

    Naturally they can complain intensely about being overwhelmed by stimulation… but in social situations, especially they more often notice something irrelevant, whereas HSPs would be paying more attention to subtle facial expressions, at least when not overaroused.”

    This passage alone expresses a deeply ill informed and outdated conception of autism. This is unsurprising because the book was first published in 1996 … long before the neurodiversity movement.

    Aron’s views toward autistics are harmful and blatantly inaccurate.

    • Many autistics are acutely aware of facial expressions and may even be hyper empathic. *
    • It is a myth that all autistic people struggle with eye contact. †
    • When autistic people do struggle with eye contact one of the main causes is sensory overload. ‡
    • It is dehumanizing to judge what the autistic person is looking at or noticing as irrelevant. (Yes, we do notice small details sometimes! But it doesn’t mean we aren’t listening if we aren’t reacting the way you expect.)

    This book was published in 1996. It is outdated and should go out of print.

    Before we go any further it’s really important to start with this:

    If you’ve met one autistic person you’ve met one autistic person.

    If you know someone who is autistic you may think that you understand autism, but we are each incredibly unique.

    One person may love loud music the other might cover their ears.

    One kid plays elbow deep in mud the other can’t bear to touch it.

    One person loves running into the ocean the other can’t shower because they hate feeling water on their face.

    No single person has every autistic trait.

    This is why we say autism is a spectrum.

    Imagine it like a color wheel.

    Each color is a different intensity of a certain autistic trait.

    Autism Spectrum The Autism Spectrum is NOT linear (rainbow bar chart) less autistic very autistic The Autism Spectrum looks more like (a color wheel): Social differences interests repetitions sensory sensitivities emotional regulation perception executive functioning other (Each wedge of the color wheel is filled in to different degrees.) Terms like "high functioning", "low functioning" and "Asperger" are harmful and outdated.

    If you identify as HSP you may not identify fully with autism at this time.

    That is okay.

    You could always call yourself “highly sensitive” or “hyper sensitive” or even just “sensitive.”

    But it’s not okay to call yourself an HSP when the term perpetuates harmful stereotypes against autism.

    I read the HSP book long ago, when I thought I myself might be an HSP and not autistic. So I know the main premise of the book is that your sensitivity is a difference and not a disorder.

    I agree!

    And guess what?

    It’s no longer the 90’s, and there is better language for that.

    Neurodiversity

    What is neurodiversity?

    “‘Neurodiversity’ is a term that suggests the human race is improved by having a diversity of different kinds of brains – like biodiversity in nature, having lots of different brains in a society means we have people with different strengths who can work together.” §

    If you experience more sensitivity than the average person you are… neurodivergent.

    It’s that simple.

    If you identify as highly sensitive you are welcome and invited to identify as neurodivergent.

    No diagnosis necessary.

    White child sized t shirt on a silver clothes hanger covered in clothing tags of various brands and sizes.

    But… you might also be autistic.

    Sensory differences are central to the autistic experience.

    Many of us believe that our sensory differences are the root cause of all other differences.

    Just look at these two brains.

    Two brain scans. The one on the left is a rainbow web reaching into all areas of the brain. The image on the right is a rainbow ribbon traveling along the language center of the brain.

    It is clear that the autistic brain (left) is processing much more sensory input than the brain on the right (neurotypical.) Differences in sensory integration may be directly related to language differences, social differences, etc.

    There are also so many autistic strengths that are never mentioned! All of that extra information that our brain doesn’t filter out as “unnecessary” makes us excel at pattern recognition and problem solving. Autistic brains notice and make connections that neurotypical don’t even perceive.

    But you may not realize this because even the professionals can’t all agree on what adult autism looks like.

    Did you know that there isn’t a fixed diagnostic criteria for autism in adults?

    They are using a test that was developed for kids and the whole process needs to be reformed. New research is slowly coming in that validates unstereotypical autistic experience.

    The field of autism is in flux.

    Early autism research was limited to aggressive nonspeaking white boys for a long time and only recently has the field begun to realize the variety of presentations autism can take. **

    If you identify as hyper sensitive I’d really encourage you to follow some autistic adults to learn more about the autistic experience and to do some more research on “masked autism”.

    Whatever you do I ask that you don’t think of autistic people as “less than” and see more of a kinship in our hypersensitive (or hyposensitive) experiences.

    Not sure where to start?

    Read my “What is autism?” post.

    Visit my library of neurodiversity affirming resources for podcasts, videos, books & more.

    Or subscribe for monthly-ish emails from me. I share my own lived experience and often write about creativity and neurodivergence.


    As an autistic mum of an autistic kid this topic is close to my heart.

    Right now I’m working on a picture book about sensory processing with autistic artist Gracie Klumpp. If you’d like to support the project you can preoder a copy (or donate one to a school or library) here.

    Illustration of individual wearing a checkered jacket standing in a sea breeze with eyes closed. Around their head is a blue halo with photographs of blue objects including seaweed, shells, and a ticket stub.

    FOOTNOTES

    * Why so many women don’t know they’re autistic with Katherine May. Glennon Doyle’s We Can Do Hard Things Episode 220.

    † Fact or fiction: people with autism never make eye contact. https://www.universiteitleiden.nl/en/news/2023/03/fact-or-fiction-people-with-autism-never-make-eye-contact

    ‡ How do adults and teens with self-declared Autism Spectrum Disorder experience eye contact? A qualitative analysis of first-hand accounts https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5705114/

    § Autism Resource Page https://katherine-may.co.uk/autism-resource-page

    ** Gender Differences in Misdiagnosis and Delayed Diagnosis among Adults with Autism Spectrum Disorder

    Racial/Ethnic Disparities in the Identification of Children With Autism Spectrum Disorders


    Image Credits

    Birds Flying: Bernard Hermant via Unsplash

    Illustration by @autistic_sketches on Instagram

    Brain Scan images via Schneider Lab

    Read more: Please stop calling yourself an HSP. 😫
  • How I Survived My First Author Event

    Last week I attended NWA Book Fest… my first appearance as an author. Indeed my first gathering of any kind since COVID times. I wanted to take some time to share about that experience.

    I’m attempting a bit of writing today while Davy “types” on his new keyboard and iPad app.

    I was so busy the week before I didn’t have any time to be nervous. I practiced my reading a time or two, installed the Square Up app to take credit card payments, and put my books in a box.

    There was a little bit of scheduling confusion and the event was running early so I was rushed right onto stage within minutes of showing up.

    (Not ideal for an autistic. I’m not gonna lie.)

    I also expected to be introduced and had only prepared for a reading. Somehow I managed to introduce myself and my book without rehearsal. I think its down to how often I have talked about my book online. Maybe it does get easier with practice. I wouldn’t say I’m captivating, but I did it.

    Right after my reading I had a group of blogger friends show up to hear me. They just missed me because of the schedule kerfuffle, but we took a photo anyway.

    Five women and a nonbinary author standing against a white brick wall smiling. It's chilly weather so we are all in various sweaters and jean jackets. Three are wearing sunglasses. I am holding my book.

    Then I did a short signing and sold 4 books. 🥳

    (Shout out to my friend Lori Lynn who served as my “emotional support extrovert” and helped me make small talk at my signing table.)

    It was really nice to see people respond to my book in real time. One woman immediately connected my book to The Artist’s Way which completely made my day. So thankful to everyone who dropped by to take a look.

    Some lessons I learned and will be adding to my self publishing course:

    • Print a QR code to purchase the ebook. (My hardcover is a deluxe edition and more people might have purchased the digital bundle at a lower price point.)
    • Print my Venmo code. (Spelling it out did not seem to work.)
    • Have something to hold business cards / stickers so they don’t blow away.
    • Probably bring a book holder as well. The books kept tumbling off the table and one or two may be damaged.

    Here is actual footage of me after the event. 😂

    (That’s Odo from Star Trek Deep Space Nine.)

    It took a lot out of me.

    I realized that this simple brief appearance pushed me to the edge of my capacity and I definitely should NOT sign up for longer events any time soon. (After two hours I felt the way I normally do after a whole convention. )

    I believe this is due to…

    • More sensory overload on a daily basis from parenting.
    • Diminished social capacity due to socializing with my toddler 24/7. (I’m just going to call him toddler till he turns 4, ok?)
    • Not going to any events for 3-4 years during early motherhood / COVID times. I am both out of practice at masking and have no desire to return to that level of social performance.

    Not only am I “re-entering” the world after COVID lockdowns, but I’m also learning how I want to show up as an autistic human. What does it mean to attend events without pressuring myself to mask (performing excitement, facial expressions, small talk, etc.)?

    Even so I was pretty wiped out afterwards. Here is how I reset the next day:

    • Time alone in the studio. I laid on the daybed and watched Netflix for an hour and then made a collage.
    • Time with Davy in the backyard.
    • A long walk with a podcast.
    • Reading in the bath.
    • Playing Cozy Grove with Davy. (More on that below.)

    I’m still pretty tired, but I feel more or less human again. If I hadn’t been able to take that time I would have stayed in a perpetually burned out / shut down kind of state.

    I still struggle with taking time for myself as a parent, but when I do I am reminded of how powerful and restorative it can be.


    Of shoes & ships & sealing wax

    Other bits & bobs to recommend this week.

    Play

    First off, I have rediscovered Cozy Grove. I played this a couple of years ago on my phone, but we just purchased it for the Nintendo Switch and I have been playing with Davy.

    It’s a really cute and relaxing game.

    You’re a scout marooned on an island haunted by (cute) bear ghosts. You run around the island finding things for them and helping them restore their memories. You can also fish and bake and craft and garden. The music and artistic style sets such an atmosphere. Have a peek.

    I’ve heard it’s kind of like Animal Crossing, but in my opinion is cuter and more fun. (I tried Animal Crossing after finishing this game the first time and didn’t connect with it.) If you’re a casual gamer and just looking for a way to relax would really recommend Cozy Grove. 🥰


    Read

    The blog post of the week for me was How to Be a Good Assistant to Yourself by Austin Kleon.


    Muse

    This post by @worry__lines on Instagram is really good food for thought.


    TOO Many Tabs

    I’ve invented this section as inspiration to browse and close the tabs I keep open on Safari. I am always dangerously close to the 500 tab limit. Hopefully these creative breadcrumbs offer some inspiration.

    Illustration

    I absolutely love this 1970’s edition of The Sword in the Stone illustrated by Alan Lee. Merlin’s cottage has always been evocative for me and this is just how I’ve imagined it.

    Vintage paperback cover of Sword in the Stone by T.H. White with art by Alan Lee. Merlin is instructing Arthur who sits at his feet. They are in Merlin's cottage which is filled with ephemera of wizardry including an armillary sphere, an owl, a skull, and a crocodile hanging from the ceiling. The whole cottage is crammed full of objects.

    I made this discovery while looking for images of my teacher muses for home educating. A few weeks later I bought a copy from ABE Books so I really don’t need this tab open anymore.

    Word Nerd

    Etaoin shrdlu was used as a “red flag by typesetters to show an error in text, but sometimes it was overlooked and made it into print.” It is the approximate order of frequency of the 12 most commonly used letters in the English language.” via The Dusty Wheel

    Wait, this is real?

    This tab was open because I saw this butterfly on Instagram and didn’t believe it was real. Fact check!

    It is indeed an orange oak leaf. Perfectly camouflaged on the outside with brilliant colorful wings when open.

    Well that was effective! Maybe I’ll do this again. What do you think?


    Thanks for reading!

    I’d love to hear what you connected with and have a chat in comments.

    Cheers,

    Sarah signed with a swoopy S
    Read more: How I Survived My First Author Event
  • Making 360 VR with a 3 year old collaborator ✨

    Gray green rabbit hopping over the text 
"down the rabbit hole" in a typewriter font

    Hullo all,

    I’m playing with the structure a bit here. Trying out categories rather than themed emails. I’m also bringing back some old themes long time supporters may recognize.

    Let me know what you think.

    I haven’t had much studio time this month unless you count making Number Block counting beads with Davy and the 3 hour masterclass I took from Amie McNee & Jimmy Winestock.


    A peek into my creative process and an update on my collection, This is my Brain on Motherhood.

    This week I’m sharing a sneak peek at a 360 VR piece I made in December. It’s taken a while to work out how to share this online.

    Still frame of 360 VR experience. A white play button floats over a nursery. Dark red yarn is strung around the room.

    UNRAVEL

    2023 / VR 360
    An immersive experience demonstrating my internal experience of motherhood.
    As an autistic parent my brain does not prune synaptic pathways. This means to process information I often have to unravel a tangle of connected thoughts among sensory input, memories, and connections most people would overlook.

    There are two ways to experience this work.

    • If you have the YouTube app you can experience this work in VR here. Just moving your phone to look around. Please select HD by tapping the cog or it will load super blurry. 🫣
    • Don’t have the YouTube app? Here’s a simulation of how it looks in 3D.
    • Or you browse still photographs here.

    Curious about the process? Here’s a timelapse.

    This piece was inspired by a piece of writing by Hayley Dunlop which reminded me of doing this as a child. It was purely creative play at the time. I later revisited this process in directing class when I was asked to “completely transform the space.”

    Hayley’s writing connected this memory to neurodivergent thought patterns which immediately made me want to create this with Davy.

    Working alongside him added all sorts of layers – both layers of meaning – and literal pools of knots (which were never part of my previous efforts.) 😂


    of shoes and ships and sealing wax header in typwriter font

    Other bits and bobs I’d like to recommend this week.

    • Katherine May’s podcast How We Live Now with Priya Parker – This is a chat about gathering well and drawing the lines we need around different social events and communities. I couldn’t have listened to this as a better time as I had been struggling with the Code of Conduct for my membership program and this gave me all the confidence to go with my gut. I’ve also ordered Priya’s book (affiliate link) which happens to have a gorgeous watercolor cover.
    • We’ve subscribed to the newspaper for the first time ever and I loved this article about artist Thaddeus Mosley.
    • Waiting for a quiet moment to enjoy this studio tour…

    I also admired these shadows.

    Windy stick casts shadows on white studio wall

    Minor updates March 2025 to correct links and images.

    Read more: Making 360 VR with a 3 year old collaborator ✨
  • Celebrating an Autism Diagnosis

    I’m an autistic adult and parent of an autistic child. I really recommend framing a diagnosis as a positive milestone and celebrating it as such.

    We celebrate the anniversary of our diagnosis’ each year and call this our “Neurotype Day.” *

    * Shout out to my friend Hayley Dunlop for coining this.

    Read more: Celebrating an Autism Diagnosis
  • Support Tools for Autism, ADHD & Sensory Processing

    I’ve put together some of our favorite support tools for autism & neurodivergence: fidgets, timers, art supplies (art is so beneficial for self regulation), and books.

    Self Regulation Tools

    The remaining links point toward Amazon for now because it is the most accessible source for most people. Please consider that many autistic and neurodivergent people rely on Amazon for products they need.*

    We need to support our own nervous systems so we can make the changes we want to see in the world.

    If you prefer to shop elsewhere you are invited to do so. Simply use these product pages as jumping off points to find similar items in indie shops. If you purchase through these links I receive a very tiny referral fee.

    Harkla Sensory Diet Workbook

    If you’re new to the idea of sensory regulation this is a great resource. It is geared toward kids, but much of it is also applicable to adults. Our needs don’t disappear – we just get older. (Affiliate Link)

    Watercolor cards with sensory supports and spread out on a table with art supplies

    Further Reading

    Check out my picture book How it Feels to Me.

    Illustration of individual wearing a checkered jacket standing in a sea breeze with eyes closed. Around their head is a blue halo with photographs of blue objects including seaweed, shells, and a ticket stub.

    Or browse below to shop more of my favorite books about autism, sensory processing, and neurodivergence.


    FOOTNOTES

    * Reasons why autistic people rely on Amazon may include: overstimulation when shopping, chronic illness, under-employment, or rural locations where products are simply not available.

    Read more: Support Tools for Autism, ADHD & Sensory Processing
  • Autism 101 for Parents

    I’m an autistic adult and parent of an autistic child. After years of internalizing my neurodivergent traits as “flaws” my child’s diagnosis changed everything for me. Learning about how autistic brains are wired helped me begin to reframe autistic traits as differences and find ways to better support both of us.

    Here is what I wish I’d known about myself growing up.

    Drawing of brain with colorful paint splatters over the top
    WHAT IS NEURODIVERGENCE?
    Watercolor illustration of the autism spectrum. A rainbow of colors blending into one another like a color wheel.
    What is autism?
    Fish bowl with red and yellow ink creating swirls like Jupiter.
    What is overstimluation?
    Logos for each sense. Finger for touch. Tongue for taste. Transparent body with heart for interoception. Ear for hearing. Eye for sight. Trampoline for vestibular. Nose for smell. Hula hoop for proprioception
    SENSORY PROCESSING WORKSHOP

    “On the Spectrum”

    When we talk about autism or neurodivergence we often mention a spectrum. Sometimes this is misunderstood as a range of intensity from “more” to “less.” But you cannot be “more” or “less” autistic or neurodivergent.

    I made a zine to illustrate the complexity and nuance of being “on the spectrum.” You can read it here.

    Spectrum: a zine about neurodivergence. Paper zine with magazine cutout letters and a watercolor spectrum with a rainbow of colors blending into one another.

    Celebrating Autism

    On a personal note, I made this video to celebrate my child’s autism diagnosis and share the news with our family. I really recommend framing a diagnosis of autism or ADHD as a positive milestone and celebrating it as such. We celebrate the anniversary of our diagnosis each year as our Neurotype Day.*

    High Masking

    It’s really important that parents consider whether they might be neurodivergent themselves. Autism and other types of neurodivergence are genetic. If you child is on the spectrum there is high chance one or both parents are also.

    Even if you don’t have enough traits for a diagnosis recognizing and supporting your neurodivergent traits is really critical.

    Neurodiversity Affirming Professionals

    Here are some therapists I have enjoyed learning from.

    Neurodiversity Affirming Education

    Daniella (@autism.conmigo) is an Autistic + ADHD parent of 2 autistic kids with a doctorate degree in education. She offers 1:1 support and consultations.

    I’ve worked with Daniella personally and highly recommend her for support home educating or advocating for your kids within traditional schools.

    Support Tools & Further Reading

    Click here for links to my favorite fidgets, sensory reset tools, and books.

    Watercolor cards with sensory supports and spread out on a table with art supplies

    How it Feels to Me

    You may also be interested my picture book, How it Feels to Me – an introduction to sensory processing for readers of all ages.

    Cover design test for How it Feels to Me - a cream cover with swatches of colors: blues, greens, oranges, the title and a dark skinned human standing at the center surrounded by a halo of objects: tokens, leaves, a traffic cone, seashell, and more color swatches. Written by Sarah Shotts. Illustrated by Gracie Klumpp. Proof #1.

    Return to the

    Neurodiversity Affirming Resource Library


    FOOTNOTES

    * Shout out to my friend Hayley Dunlop for coining this.

    Read more: Autism 101 for Parents
  • Autistic Adults

    Do you identify with some autistic traits, and want to learn more?

    Here are some resources I’ve gathered specifically for you.


    Blog Posts

    Birds flying across a pale blue sky
    Please stop calling yourself an hsp
    Watercolor illustration of the autism spectrum. A rainbow of colors blending into one another like a color wheel.
    What is autism?
    Drawing of brain with colorful paint splatters over the top
    What is neurodivergence?
    White child sized t shirt on a silver clothes hanger covered in clothing tags of various brands and sizes.
    WHAT IS OVERSTIMLUATION?

    “On the Spectrum”

    When we talk about autism or neurodivergence we often mention a spectrum. Sometimes this is misunderstood as a range of intensity from “more” to “less.” But you cannot be “more” or “less” autistic or neurodivergent.

    I made a zine to illustrate the complexity and nuance of being “on the spectrum.” You can read it here.

    Spectrum: a zine about neurodivergence. Paper zine with magazine cutout letters and a watercolor spectrum with a rainbow of colors blending into one another.

    Podcasts

    Katherine May on Glennon Doyle’s podcast We Can Do Hard Things, Episode 220

    This is a great place to start breaking down stereotypes. Please remember when listening that every autistic experience is unique (…we don’t all see rainbows.) 🌈

    And a few more podcasts.

    Blogs & Websites

    Books & Support Tools

    I’ve collected some of our favorite fidgets, regulation tools, art supplies and books here.

    Screenshot of Amazon affiliate page with images of fidgets, timers, art supplies and books.

    How it Feels to Me

    You may also be interested my picture book, How it Feels to Me – an introduction to sensory processing for readers of all ages.

    Cover design test for How it Feels to Me - a cream cover with swatches of colors: blues, greens, oranges, the title and a dark skinned human standing at the center surrounded by a halo of objects: tokens, leaves, a traffic cone, seashell, and more color swatches. Written by Sarah Shotts. Illustrated by Gracie Klumpp. Proof #1.

    Return to the

    Neurodiversity Affirming Resource Library

    Read more: Autistic Adults
  • What is Overstimulation?

    I made this video to share my experience of overstimulation.

    I also find that my autistic traits are almost always rooted in sensory differences. So this a helpful place to start when discussing autism. Overstimulation can also be experienced by ADHDers.

    (There’s also a shorter 30 second version here.)

    Return to the

    Neurodiversity Affirming Resource Library

    Read more: What is Overstimulation?
  • How it Feels to Me

    How it Feels to Me is a picture book about neurodiversity for all ages. 

    This book explores the science behind how we each experience the world. Readers will learn about differences in sensory experiences and better understand themselves and others. This book is written and illustrated by two autistic creators making the book they wish they’d had growing up.

    Concept art for how it feels to me

    Learn more…

    This self published book is fully funded and in the proofing stage. If you’d like to know more about the inspiration behind this project you can watch our crowdfunding video here.

    Support the project by preordering a limited edition hardcover.

    Or choose to donate a copy to a school, library, or a neurodivergent family in financial hardship.

    Meet Sarah & Gracie

    I am wearing overalls singing books. I'm sitting under a maple tree next to a pile of books on a quilt.

    Sarah Shotts (author) is an autistic interdisciplinary artist and author of Discover Your Creative Ecosystem. Their writing has also been published in Ought: The Journal of Autistic Culture. Sarah earned a Masters degree in Applied Drama from Goldsmiths University of London and a bachelors in Fine and Performing Arts at Mississippi University for Women (MUW.)

    Gracie has short dark hair and glasses and is wearing a bandana and holding a paintbrush.

    Gracie Klumpp (illustrator) Gracie is an autistic illustrator and writer who lives in an old Airstream, and never runs out of stories. She’s not always the best at talking about them—but that’s why she’s always creating them. Gracie studied Digital Media Arts: Animation at Huntington University, and has used her animation chops to inform her illustration work since graduating. Gracie makes storytelling magic in all sorts of mediums, and doesn’t really mind which she uses so long as it serves the story best.


    Related Posts

    Read more: How it Feels to Me